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Blood Cancers & Disorders Support Group

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822 total results
Discussion
New to CLL-no treatment-what to eat?
Receny diagnosed Nov. with CLL. No treatment recommended 92yrs. What can I eat. Saw somewhere said no dairy...Diabetic diet dairy recommended. Not sure what to...
Last active: Oct 29, 2023
Discussion
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
Last active: Aug 18, 2024
Discussion
CLL and slow healing following dental work
I am in w and w with cll and up till now have not experienced problems with immunity. I recently had a tooth extraction which...
Last active: Aug 11, 2024
Discussion
Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?
Started therapy for CLL after 2.5 years of wait and watch with my excellent doctor at Mayo and local haematologist.This was predicted based on prognostic...
Last active: May 24 12:22pm
Discussion
Any suggestions on how to travel safely with CLL?
Husband diagnosed 3 mos ago with CLL. No treatments at this time, we’re planning a weekend in Vegas to see a couple of shows, we...
Last active: Sep 16, 2022
Discussion
CLL and high kappa free light chains
I was recently diagnosed and been having a lot symptoms like hot flashes, bone and joint pain and fatigue. WBC are at 26 and lymphocytes...
Last active: Feb 25, 2023
Discussion
Might have CLL: Does it come on fast?
6 months ago my rheumatologist did some blood work and everything was normal. Now, this month with different dr, my blood test showed elevated white...
Last active: Jul 9, 2024
Discussion
Anyone else experiencing these symptoms with CLL diagnosis....?
I was diagnosed with CLL last summer however upon further review of my medical records and CBC results found that my CLL likely goes back...
Last active: Jun 10 12:23pm
Discussion
What are Smudge Cells? Do they indicate CLL?
If I have smudge cells in my blood and do not have high white cells could that be a consideration for CLL?
Last active: May 12, 2023