Blood Cancers & Disorders Support Group

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Comment

I was diagnosed PV in April ‘22, with JAK2 gene. Bloodlettings and Hydroxurea were prescribed. The...

https://connect.mayoclinic.org/comment/793807/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Comment

The best comment was to listen and ask your trusted doc. Not chats. Some people will...

https://connect.mayoclinic.org/comment/1279956/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

Comment

When I was diagnosed with Myelofibrosis back in 03/2024 my Hematologist placed me on Danazol. I...

https://connect.mayoclinic.org/comment/1132106/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Comment

Hello, I have had PV with JAK2 for about 5 years. I work and live a...

https://connect.mayoclinic.org/comment/812063/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Comment

Interesting. I had a flare up of my gvhd spinal issues after my first Covid vax....

https://connect.mayoclinic.org/comment/634600/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 11, 2021

Comment

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Comment

I’m 76 years old and was diagnosed with polycythemia vera with Jack to in 2021. I...

https://connect.mayoclinic.org/comment/1401713/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Comment

https://www.nccn.org/patients/guidelines/content/PDF/mpn-patient.pdf I think you will find this helpful. It will take a couple of readings before...

https://connect.mayoclinic.org/comment/1201894/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

Comment

@ tinak123 I am 70 YO, and was diagnosed with ET when I was 50. I...

https://connect.mayoclinic.org/comment/1399081/

Discussion: Living with ET

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Comment

I'm new to this page and to the disease. I'm on 20 mg Jakafi though they...

https://connect.mayoclinic.org/comment/1226383/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2025