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368 total results
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Discussions (30)
Comments (338)
Comment
I was just diagnosed last week with ET (CALR mutation) as a result of a marrow...
https://connect.mayoclinic.org/comment/776073/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Nov 21, 2022
Comment
Your health picture sounds exactly like mine. I’m below normal for hemoglobin and red cells. Platelets...
https://connect.mayoclinic.org/comment/1297988/
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Discussion:
Anyone with primary myelofibrosis, low risk, asymptomatic?
Support Group:
Blood Cancers & Disorders
Posted: May 6 8:02am
Comment
Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...
https://connect.mayoclinic.org/comment/1103555/
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Discussion:
HU & Titanium Oxide
Support Group:
Blood Cancers & Disorders
Posted: Jul 11, 2024
Comment
Not sure if this is the place to write a follow up note. I have written...
https://connect.mayoclinic.org/comment/194314/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Apr 23, 2019
Comment
Which Mayo Clinic location are you going to? The top doctors at Mayo for this rare...
https://connect.mayoclinic.org/comment/1314708/
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Discussion:
Primary Myelofibrosis: What is life going to be like now?
Support Group:
Blood Cancers & Disorders
Posted: May 28 9:08am
Comment
My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...
https://connect.mayoclinic.org/comment/646343/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Oct 19, 2021
Comment
Thanks. I am new to this and definitely want to see the amin discussion so you...
https://connect.mayoclinic.org/comment/203951/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jan 4, 2019
Comment
Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...
https://connect.mayoclinic.org/comment/969263/
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Discussion:
VonJo (pacritinib) effects
Support Group:
Blood Cancers & Disorders
Posted: Nov 22, 2023
Comment
Hello @akeytoo, I don’t think anyone is fond of chemo treatments but they can be absolutely...
https://connect.mayoclinic.org/comment/911908/
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Discussion:
BESREMi anyone?
Support Group:
Blood Cancers & Disorders
Posted: Aug 12, 2023
Comment
Hi, My BMB was on 2/4/25 and was painless with only the local the NP gave...
https://connect.mayoclinic.org/comment/1282148/
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Discussion:
CT guided Bone Marrow Biopsy: Your experiences?
Support Group:
Blood Cancers & Disorders
Posted: Apr 15 12:24am
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