Blood Cancers & Disorders Support Group

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Comment

So sorry you are dealing with this. It is overwhelming. I can relate. In January, was...

https://connect.mayoclinic.org/comment/1520149/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:18am

Comment

Hi @gajokos , No worries. I think I had forgotten to read what you wrote in...

https://connect.mayoclinic.org/comment/1501367/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 2:07am

Comment

Good morning, @samlupowitz Thanks for popping into the conversation today. What an interesting discovery and finally,...

https://connect.mayoclinic.org/comment/1503050/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 9:02am

Comment

My husband has been diagnosed with myeloid Metaplasia with Myelofibrosis . White count was 30,000 and...

https://connect.mayoclinic.org/comment/101832/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

Comment

@loribmt - in reference to the pet question above and overall survivorship plan question. I am...

https://connect.mayoclinic.org/comment/1370713/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 14, 2025

Comment

Hi, I have had Essential Thrombocythemia for over 15 years. I was on Anagrelide, and this...

https://connect.mayoclinic.org/comment/1202567/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Comment

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

Hi @bjsdancer, I'm tagging @rcand10s who wrote about being diagnosed with Primary Myelofibrosis in 2013. I'm...

https://connect.mayoclinic.org/comment/101833/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

Comment

My husband was diagnosed with myelofibrosis in January this year2025. His platelets stay low most of...

https://connect.mayoclinic.org/comment/1439773/

Discussion: Idiopathic Thrombocytopenia: Anyone had platelet randomly drop?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

Comment

Hello PV friend ! I have been on JAKAFI FOR 10 months took 20 milligrams a...

https://connect.mayoclinic.org/comment/1310325/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025