Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,069 total results

Comment

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Comment

I am in the same boat. I was recently diagnosed with MDS with anemia. It's a...

https://connect.mayoclinic.org/comment/1366073/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

Comment

I have low risk MDS and have been receiving treatments of Reblozyl These treatments have been...

https://connect.mayoclinic.org/comment/1080366/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Comment

Hi @hpjohnson85, welcome to Connect. MDS (myelodyplastic syndromes) is actually a group of blood cancers that...

https://connect.mayoclinic.org/comment/1405840/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

Comment

Have had MDS for a couple of years with no symptoms. Lately have about a dozen...

https://connect.mayoclinic.org/comment/1205915/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2025

Comment

I’m interested in this topic I know little about. I do have smoldering multiple myeloma and...

https://connect.mayoclinic.org/comment/1468048/

Discussion: Anyone have idiopathic pancytopenia?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2025

Comment

cindyborch, Tomorrow for sure you will have great informative posts to ease your mind. Many of...

https://connect.mayoclinic.org/comment/1282903/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Comment

Hi @katgob! You were in my notes to check in with you soon because I knew...

https://connect.mayoclinic.org/comment/1015879/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 14, 2024

Comment

@loribmt YES. She was diagnosed with High Risk MDS back in April/ May and started Vidaza...

https://connect.mayoclinic.org/comment/1401093/

Discussion: Vidaza, keep going or stop

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

Comment

Hi @daleanddonna I wanted to check in with you to see how your husband is doing....

https://connect.mayoclinic.org/comment/1380318/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2025