Blood Cancers & Disorders Support Group

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Comment

I have had afib for fifty years and was diagnosed last year for pv. Cardiologists and...

https://connect.mayoclinic.org/comment/770824/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Comment

Your husband is post transplant? Did he have lgl previous? My husband has MDS too and...

https://connect.mayoclinic.org/comment/1111658/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

Hi I have MDS with 5Q and started taking Lenalidomide about 2 1/2 weeks ago. I...

https://connect.mayoclinic.org/comment/1256422/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 3:50pm

Comment

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

Comment

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Comment

Hi @gothman. It’s been several months since our last conversation and I wanted to check in...

https://connect.mayoclinic.org/comment/1266769/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 5:30pm

Comment

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 7:13pm

Comment

Good morning, @tyson1221 I know you’re anxious to get a diagnosis because of your low blood...

https://connect.mayoclinic.org/comment/807507/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

Hi @dwolden, It’s been quite awhile since we chatted. Your husband was just starting chemo for...

https://connect.mayoclinic.org/comment/1080255/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 3, 2024

Comment

I had to wait two years before I started treatment. My hemoglobin dropped to 10. Started...

https://connect.mayoclinic.org/comment/1164875/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024