Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

989 total results

Comment

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Comment

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...

https://connect.mayoclinic.org/comment/1137758/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7 10:30am

Comment

I'm Jak2 positive also verified by 2 separate labs..I wasn't happy with my first hematologist not...

https://connect.mayoclinic.org/comment/1088001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 16 2:05pm

Comment

Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was...

https://connect.mayoclinic.org/comment/826408/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

Comment

I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is...

https://connect.mayoclinic.org/comment/194370/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2020

Comment

My wife, who is 72 was recently diagnosed with ET. She had a blood test prior...

https://connect.mayoclinic.org/comment/1145648/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Sep 22 2:15pm

Comment

Thank you for the responses. My doctor at Kaiser ordered the JAK2 test, but I freaked...

https://connect.mayoclinic.org/comment/941863/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023