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1,208 total results
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Discussions (78)
Comments (1,130)
Comment
I’ve seen many who get there numbers down in the 500’s and are ok with that....
https://connect.mayoclinic.org/comment/764541/
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Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Oct 23, 2022
Comment
My son is almost 47 and has been dealing with high platelet count 750,000 for about...
https://connect.mayoclinic.org/comment/194300/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Apr 5, 2019
Comment
I’m wondering who tried the keto diet and how it worked. I started keto a year...
https://connect.mayoclinic.org/comment/775370/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Nov 20, 2022
Comment
Just because you have the JAK2 mutation it doesn't mean you cannot have other gene mutations....
https://connect.mayoclinic.org/comment/194366/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Feb 26, 2020
Comment
That’s so interesting you weren’t getting a CBC draw in all that time. I had always...
https://connect.mayoclinic.org/comment/1323595/
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Discussion:
New to Hydrea for ET
Support Group:
Blood Cancers & Disorders
Posted: Jun 9 10:47am
Comment
Are you by chance taking testosterone, either by injection or a topical preparation? Polycythemia (but not...
https://connect.mayoclinic.org/comment/784089/
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Discussion:
Polycythemia Vera - Help getting Diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Dec 12, 2022
Comment
My hgb is around 16.8 and hct around 49 for the past 2 years. Jak2 is...
https://connect.mayoclinic.org/comment/1131134/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Aug 26, 2024
Comment
Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not...
https://connect.mayoclinic.org/comment/855393/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: May 6, 2023
Comment
Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...
https://connect.mayoclinic.org/comment/1319791/
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Discussion:
New to Hydrea for ET
Support Group:
Blood Cancers & Disorders
Posted: Jun 3 9:38pm
Comment
Yes, my naturopath has me on Nattokinese, it’s similar but different. He works w/my heme doc....
https://connect.mayoclinic.org/comment/1017850/
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Discussion:
Concerned about medications for ET JAK2
Support Group:
Blood Cancers & Disorders
Posted: Feb 18, 2024
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