Blood Cancers & Disorders Support Group

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Comment

My hematologist wanted to keep my platelets low because of clotting events in the past. I...

https://connect.mayoclinic.org/comment/1313588/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Comment

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Comment

rmegg @rmegg while my first phlebotomy help; numbers were 300 down from 700, short time. I...

https://connect.mayoclinic.org/comment/816259/

Discussion: polycythemia vera: Rusfertide in stage 3 research: Any info?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Comment

1pearl, Having faith in your healthcare provider is a great comfort when navigating conditions. I was...

https://connect.mayoclinic.org/comment/1252950/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

Comment

trustfaith4, I am not an expert on ET but I have have experience with Polycythemia Vera...

https://connect.mayoclinic.org/comment/1167012/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

Comment

Hi @seamus1010 I found an article on Healthtap.com with the same question you have…Is it safe...

https://connect.mayoclinic.org/comment/825949/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

@hipsu5, I am also a member of the myeloproliferative neoplasm (MPN) club. My condition is called...

https://connect.mayoclinic.org/comment/1484417/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 6:33am

Comment

Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...

https://connect.mayoclinic.org/comment/807931/

Discussion: Possible Polycythemia Tinnitus, Dizziness, Headache, Fatigue

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

Hello everyone, I have had Polycythemia Vera for about 3 years, and until recently I had...

https://connect.mayoclinic.org/comment/1589205/

Discussion: Words are coming slower; cognitive decline seen in PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 2:19pm

Comment

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

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