Blood Cancers & Disorders Support Group

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Comment

Hi Eileen, So i have been in Pegasys for 3 months now. I inject once a...

https://connect.mayoclinic.org/comment/807365/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Comment

Hi Lori, started couple days ago but didn't pay attention until I weighed myself and no...

https://connect.mayoclinic.org/comment/916493/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Comment

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10 8:32pm

Comment

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29 2:48pm

Comment

I was started on 500 mg per day, then up to three extra per week after...

https://connect.mayoclinic.org/comment/1177399/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Comment

Good question! I am sorry you're experiencing these problems. Looking back, are you having more dizziness/brain...

https://connect.mayoclinic.org/comment/1180614/

Discussion: Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

Comment

I have also experienced “motility” issues over the past few months and decided it might just...

https://connect.mayoclinic.org/comment/1316619/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 30 1:22pm

Comment

Hi Lori - Judy here keeping you posted. Cutting my Tasigna from 600 mg to 300...

https://connect.mayoclinic.org/comment/765651/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2022

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

I am so fortunate with my Mycosis fungoides which I call CTCL, as I was diagnosed...

https://connect.mayoclinic.org/comment/943799/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023