Blood Cancers & Disorders Support Group

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Comment

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Comment

First time joining a group here used mayo for research but now ...Im recently placed in...

https://connect.mayoclinic.org/comment/879738/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Welcome to Connect, @wesm. Polycythemia Vera is a condition where your body is producing too many...

https://connect.mayoclinic.org/comment/1094588/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Comment

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...

https://connect.mayoclinic.org/comment/784473/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Comment

Hello, my fellow veteran, I too was exposed to many dangerous chemicals, pollutants, and contaminants. I...

https://connect.mayoclinic.org/comment/1162660/

Discussion: Vietnam Vet and exposure to Benzene

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

hello, I have polycythemia Vera JAK2 positive..the JAK2 Positive version is a more severe form..I se...

https://connect.mayoclinic.org/comment/1401469/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

Comment

Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...

https://connect.mayoclinic.org/comment/1144372/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

Comment

Hi @ettap, this post was years ago but curious how things are going now? If I'm...

https://connect.mayoclinic.org/comment/919567/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021