Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

547 total results

Comment

Welcome to Connect, @snakebite It’s so important for us to keep a positive countenance especially when...

https://connect.mayoclinic.org/comment/893512/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Hi @davi0937, I am not of any help as I really do not know what “type”...

https://connect.mayoclinic.org/comment/1348648/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Comment

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

My buddy was diagnosed with Myelofibrosis at Mayo a few weeks ago. He will start on...

https://connect.mayoclinic.org/comment/697402/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

Comment

@baygirl80 I was on Jakafi for 8-9 years before my ET converted to secondary myelofibrosis. In...

https://connect.mayoclinic.org/comment/1445447/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

Comment

Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...

https://connect.mayoclinic.org/comment/1312721/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...

https://connect.mayoclinic.org/comment/1103248/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Comment

@loribmt - @loribmt Thanks for this encouragement! I believe we are under great care provided by...

https://connect.mayoclinic.org/comment/1521631/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 7 10:02am

Comment

Hi @circawdm, The best my O/H could do with my current Kaiser Advantage plan is to...

https://connect.mayoclinic.org/comment/1316677/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

Comment

Hello Lori, You once commented on a response I made about finding a specialist for MPNs....

https://connect.mayoclinic.org/comment/1064989/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9, 2024