Blood Cancers & Disorders Support Group

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Comment

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m...

https://connect.mayoclinic.org/comment/787262/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Comment

Hi I am living with Jak2 mutation. Would love to talk I was just diagnosed in...

https://connect.mayoclinic.org/comment/1293529/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Comment

I found the BloodCancerUnited (formerly Leukemia/Lymphoma Society) a good source of information on ET www.LLS,org for...

https://connect.mayoclinic.org/comment/1541815/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 3 9:12am

Comment

Hi All! I am a 83 year old female, diagnosed about 1 yr ago with ET....

https://connect.mayoclinic.org/comment/1548082/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 11 2:23pm

Comment

Personally, I was more scared of stroke or heart attack than the words cancer/chemo when I...

https://connect.mayoclinic.org/comment/1096751/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2024

Comment

I’m waiting on my results for Jak2, CalR and MPL gene, curious do you take B12...

https://connect.mayoclinic.org/comment/696699/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2022

Comment

I just learned that my JAK2 is positive. I spoke with my oncologist before the test...

https://connect.mayoclinic.org/comment/1319637/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

Comment

Ok, if you have the JAK2 mutation and taking HU, the links I provided above should...

https://connect.mayoclinic.org/comment/1269599/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Comment

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019