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Comment

Ok, if you have the JAK2 mutation and taking HU, the links I provided above should...

https://connect.mayoclinic.org/comment/1269599/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Comment

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Comment

I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...

https://connect.mayoclinic.org/comment/1471523/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

Comment

Ive been diagnosed with PV one of the MPN'S and I could tell something was wrong...

https://connect.mayoclinic.org/comment/1088522/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Comment

I was also recently diagnosed (JAK2 ET) after having a routine blood test. I am in...

https://connect.mayoclinic.org/comment/1140842/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2024

Comment

I just saw your post. May I ask your age? I was diagnosted with ET JAK2...

https://connect.mayoclinic.org/comment/1465336/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

Comment

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Comment

@ryjon So sorry, May I ask if you have any of the symptoms described here: Polycythemia...

https://connect.mayoclinic.org/comment/1457405/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

Comment

Hi Leonard I also tested for a mutation it’s a monoclonal protein spike. So with that...

https://connect.mayoclinic.org/comment/974150/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023