Blood Cancers & Disorders Support Group

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Comment

@rabab101, I found this information and negative or non-detectable JAK2 "Negative results for all JAK2 mutations...

https://connect.mayoclinic.org/comment/834318/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Comment

Hi @raremiracle2, I had 1st phlebotomy in 2021 and this year second time. My history started...

https://connect.mayoclinic.org/comment/808508/

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

I have polycythemia Vera..Cancer is not new to me, I had breast cancer in 2009 with...

https://connect.mayoclinic.org/comment/1093620/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2024

Comment

Wow that is an extremely high amount to start on but I can only assume it...

https://connect.mayoclinic.org/comment/1065766/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Comment

I have had Polycythemia Vera (PV) for 6 years now. No other symptoms before diagnose other...

https://connect.mayoclinic.org/comment/1031426/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Comment

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

Katrink, welcome to the Mayo Polycythemia Vera (PV) page. I was diagnosed with PV in 2018...

https://connect.mayoclinic.org/comment/1400143/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

Comment

@jeanette1954 From information I’ve gleaned over time, from my understanding HU can help to control the...

https://connect.mayoclinic.org/comment/1495236/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 5:57pm

Comment

New subject. I have Polycythemia Vera not sure how long however I noticed my cells were...

https://connect.mayoclinic.org/comment/1126243/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024