Blood Cancers & Disorders Support Group

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419 total results

Comment

Unfortunately, I had bad side effects—extreme fatigue, shortness of breath in situations where it never happened...

https://connect.mayoclinic.org/comment/861813/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

Hi @1pearl, I know in retrospect you’re feeling that you shouldn’t have gotten the bone marrow...

https://connect.mayoclinic.org/comment/1348033/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 11:43am

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

Hi, I found this old post, but yes, my O/H changed my diagnosis from ET on...

https://connect.mayoclinic.org/comment/1297863/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: May 5 11:12pm

Comment

Update. Good morning. I was diagnosed 2 1/2 years ago. At the time, both the diagnosis...

https://connect.mayoclinic.org/comment/1369631/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13 8:17am

Comment

Bone marrow felt like a quick bee sting for me. Over in 10 minutes. I would...

https://connect.mayoclinic.org/comment/787277/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Comment

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Comment

Hello,how are you all ?❤️ Well ,my biopsy results:no evidence of granuloma or abnormal lymphoid cell...

https://connect.mayoclinic.org/comment/1049809/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Comment

My hematologist about 6 yrs ago diagnosed me with primary myelofibrosis at 71 yrs old, after...

https://connect.mayoclinic.org/comment/1217600/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 3:50pm

Comment

My platelet count was 1,225,000 when I was first diagnosed in Venezuela., S.A. My hematologist there...

https://connect.mayoclinic.org/comment/203950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019