Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

551 total results

Comment

@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....

https://connect.mayoclinic.org/comment/1503650/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 4:33am

Comment

Thank you, Lori, for your response and suggestions. It’s so gratifying and comforting to now be...

https://connect.mayoclinic.org/comment/1253226/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

Comment

Welcome to Connect, @tamijulien. At this time, a stem cell transplant remains the only possibility for...

https://connect.mayoclinic.org/comment/1103793/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Comment

I'm extremely grateful that they have a better diagnostic system now, and even more grateful that...

https://connect.mayoclinic.org/comment/892932/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

Comment

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

Comment

Hi withhope, I am very sorry you have had such a bad experience with all that....

https://connect.mayoclinic.org/comment/1305421/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

Comment

@davi0937 that is great you slipped into that trial just in time! I think hemoglobin affects...

https://connect.mayoclinic.org/comment/1414672/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

Comment

Hi @marygantt, I totally relate to feeling confused by doctor’s recommendations! I was diagnosed with ET...

https://connect.mayoclinic.org/comment/1325811/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2025

Comment

Hi Kelli, I have no fatigue, but high platelets and saw general hematologist/oncologist who diagnosed me...

https://connect.mayoclinic.org/comment/1522536/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 8 1:45pm

Comment

Hello PV FRIEND I had PV for almost 20 years From my perspective, that is a...

https://connect.mayoclinic.org/comment/1501094/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Feb 8 3:51pm