Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

509 total results

Comment

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

I was diagnosed with Cutaneous T Cell Lymphoma back in 2010. It took quiet awhile to...

https://connect.mayoclinic.org/comment/1109989/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

Comment

@lindakay55 Great narrative of your experience with this condition. My experience with it was very similar...

https://connect.mayoclinic.org/comment/1464901/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Comment

I didn’t have any problems with side effects the entire time I was on it except...

https://connect.mayoclinic.org/comment/1407750/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

Comment

I have PCV with Jack 2. I struggle with itching and slight headaches and ear aches....

https://connect.mayoclinic.org/comment/1086049/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Comment

Great question. My first sign was itching after a soaking bath. I love to soak in...

https://connect.mayoclinic.org/comment/886546/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Comment

Hi I am 75 also and diagnosed maybe in 2019. Anyhow I have only done baby...

https://connect.mayoclinic.org/comment/1368778/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Comment

Hi @mrducks. Welcome to Connect. Let’s get you over to the right support group where you’ll...

https://connect.mayoclinic.org/comment/1252153/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

So sorry you are dealing with this. It is overwhelming. I can relate. In January, was...

https://connect.mayoclinic.org/comment/1520149/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:18am

Comment

Out of sheer dumb luck, I have never had any blood numbers that have been "off"...

https://connect.mayoclinic.org/comment/774637/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022