Blood Cancers & Disorders Support Group

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Comment

@leene808 Your story came up while I was researching hydroxyurea (HU), and I wanted to reach...

https://connect.mayoclinic.org/comment/1618224/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 11 4:21pm

Comment

The HU should help to bring down the high platelet level to a more normal level....

https://connect.mayoclinic.org/comment/1209073/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2025

Comment

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

Comment

Hi @divaterry, Well, dare I say welcome? I’m sure the news of having ET or essential...

https://connect.mayoclinic.org/comment/1548555/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 12 9:24am

Comment

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Comment

I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...

https://connect.mayoclinic.org/comment/910025/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Comment

There are a series of genetic tests that can be performed to help determine mutations, as...

https://connect.mayoclinic.org/comment/252004/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Comment

Hello @cherilynb Feeling that your doctors are dismissive is one of the most frustrating things. Especially...

https://connect.mayoclinic.org/comment/845127/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Comment

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...

https://connect.mayoclinic.org/comment/967884/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Comment

Hello, susi1950. HU slows production of platelets. It does not destroy them. As far as I...

https://connect.mayoclinic.org/comment/1615983/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jul 8 6:28pm

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