Blood Cancers & Disorders Support Group

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Comment

I have been on Besrimi for a few months now and am having no side effects....

https://connect.mayoclinic.org/comment/1228582/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

Comment

I had a change of my vision while on Hydrea. I went to my eye dr...

https://connect.mayoclinic.org/comment/1168473/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Comment

Well…the first thought that ran through my mind was, “You do know that blood clots can...

https://connect.mayoclinic.org/comment/866166/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Comment

I remember the panic amongst my loved ones when I was diagnosed in 2022 with PV....

https://connect.mayoclinic.org/comment/1187348/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2024

Comment

Thank you so very much. This is helpful. Best to you on your Besrimi journey. I've...

https://connect.mayoclinic.org/comment/1161041/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

Comment

My hematologist was the one that the Besrimi had to come from a specialty pharmacy and...

https://connect.mayoclinic.org/comment/1158212/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2024

Comment

Was on it For 26months No side Affects i’m a Roofing Contractor didn’t notice anything with...

https://connect.mayoclinic.org/comment/1566472/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: May 4 1:05pm

Comment

@lehall125 You and others might find my experience informative. I was diagnosed with essential thrombocythemia about...

https://connect.mayoclinic.org/comment/1471947/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:39am

Comment

I could not take the Hydroxyurea either. I am now getting injections of Besrimi every other...

https://connect.mayoclinic.org/comment/1159379/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

Comment

@nohrt4me I am on Besrimi and I definitely cannot afford it. I got a grant through...

https://connect.mayoclinic.org/comment/1534334/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 11:23am

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