Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

346 total results

Comment

Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am...

https://connect.mayoclinic.org/comment/1082496/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

Comment

Hi @drw32, I am glad to see you find Connect and others with Cardiomyopathy of Transthyretin-Mediated...

https://connect.mayoclinic.org/comment/1530239/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:17pm

Comment

CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...

https://connect.mayoclinic.org/comment/1163333/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Comment

@evoxmas I just found out about this forum yesterday, so I am sure a lot has...

https://connect.mayoclinic.org/comment/1041695/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Comment

I was diagnosed with system amyloidosis AL in March @ the Mayo Clinic in Rochester Minnesota....

https://connect.mayoclinic.org/comment/1069538/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

Comment

It is definitely more likely that one will die with MGUS as a benign and asymptomatic...

https://connect.mayoclinic.org/comment/1112835/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Comment

Thank you I know nothing about this disease I have been battling HCM since 2013 since...

https://connect.mayoclinic.org/comment/886104/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Comment

What is the process for wanting to be evaluated at the Mayo Clinic? How do you...

https://connect.mayoclinic.org/comment/645619/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2021

Comment

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Comment

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024