Blood Cancers & Disorders Support Group

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Comment

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Comment

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 2:16pm

Comment

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

Comment

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19 9:58am

Comment

Good for you, it is behind you now! I was super anxious for that procedure as...

https://connect.mayoclinic.org/comment/1363654/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 4 2:19pm

Comment

Lori, What a blessing !!! Thank you !!! Hospital missed PV Nov 2020 but; Hospitalized same...

https://connect.mayoclinic.org/comment/795959/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

I recently learned pterostilbene from blueberries offers greater quercetin absorption than resveratrol. Going in that direction...

https://connect.mayoclinic.org/comment/132654/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2020

Comment

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 10:05am

Comment

It is a smart choice to see a specialist that has focus on Myelofibrosis. I live...

https://connect.mayoclinic.org/comment/1314992/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 1:47pm

Comment

Hi nohrt4me, Thanks for posting. Yes, there are concerns still with only CALR mutation too I...

https://connect.mayoclinic.org/comment/1225391/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 30 10:18am