Blood Cancers & Disorders Support Group

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Comment

I have polycythemia and experienced extreme itching for years, especially around my ankles. I mauled my...

https://connect.mayoclinic.org/comment/750783/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Comment

@norseman44 Checking in to see how your itchies are doing? Did stopping the dexamethasone help your...

https://connect.mayoclinic.org/comment/1007882/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Comment

My ithing seems to be a bit a quandry from my PCP to my hematologist-oncologist. I'm...

https://connect.mayoclinic.org/comment/916141/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

Comment

Welcome, @yrag. I moved your post about ITP to this active discussion: - Immune Thrombocytopenia Purpura...

https://connect.mayoclinic.org/comment/908362/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Comment

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

@donnamae90 Ultimately the choice for transfusions will be your choice. I am trying to avoid transfusions...

https://connect.mayoclinic.org/comment/1190250/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Comment

@nbadry - my side effects are relatively mild: occasional joint pain, initially some itching, and fatigue....

https://connect.mayoclinic.org/comment/1089046/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Comment

Mom is still feeling great…just had 88th birthday…. I find she’s a little pale some days...

https://connect.mayoclinic.org/comment/1314000/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Comment

I was diagnosed with Cutaneous T Cell Lymphoma back in 2010. It took quiet awhile to...

https://connect.mayoclinic.org/comment/1109989/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

Comment

@lindakay55 Great narrative of your experience with this condition. My experience with it was very similar...

https://connect.mayoclinic.org/comment/1464901/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025