Blood Cancers & Disorders Support Group

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Comment

Hi Stephanie, Yes people with Lividoid Vasculopathy have reported having ulcers that itch very badly. I...

https://connect.mayoclinic.org/comment/52568/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2018

Comment

Mom just had her bloodwork this week… everything is stable… high things were still high… low...

https://connect.mayoclinic.org/comment/1336307/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Jun 27 10:34am

Comment

I am new to this, so all I will do at this point is explain my...

https://connect.mayoclinic.org/comment/1357124/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jul 26 4:15pm

Comment

I have been diagnosed with myelo- fibrosis about seven years ago. Before that it was a...

https://connect.mayoclinic.org/comment/50504/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2013

Comment

https://www.nccn.org/patients/guidelines/content/PDF/mpn-patient.pdf I think you will find this helpful. It will take a couple of readings before...

https://connect.mayoclinic.org/comment/1201894/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 1 3:16pm

Comment

Update: So I had my follow up with my cardiologist and according to him there's nothing...

https://connect.mayoclinic.org/comment/885330/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2023

Comment

Thanks for moving me Colleen, much appreciated. I live in a small coal mining community in...

https://connect.mayoclinic.org/comment/731543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

Comment

I'm 70, ET-CALR x15 yrs, HU x 6 yrs. Recently have been experiencing worsening skin itching...

https://connect.mayoclinic.org/comment/1085383/

Discussion: Ongoing effects of ET and drugs

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Comment

Hi @sandy1959, actually itching is one of the most commonly reported symptoms of essential thrombocytosis. Hives...

https://connect.mayoclinic.org/comment/817463/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Comment

I also have the disorder of High Factor VIII. I had a bilateral pulmonary embolism occur...

https://connect.mayoclinic.org/comment/593601/

Discussion: High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2021