Blood Cancers & Disorders Support Group

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Comment

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

Comment

I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...

https://connect.mayoclinic.org/comment/1279867/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

Comment

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024

Comment

Do not worry Jenrico. Your symptoms are common for AL but will improve the more you...

https://connect.mayoclinic.org/comment/88307/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2016

Comment

Lori, Yes I appreciate what you are saying. Sometimes it is best to leave well enough...

https://connect.mayoclinic.org/comment/775155/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Comment

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

Comment

In 2020 I started having different health problems - shortness of breath, swelling in legs. Primary...

https://connect.mayoclinic.org/comment/1466775/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

Comment

My husband has MGUS and amyloidosis and received treatments and then a stem cell transplant in...

https://connect.mayoclinic.org/comment/847175/

Discussion: Has anyone experienced or is familiar with a high PTHrp?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Comment

Lori, Thank you for the article, and for your inquiry also I am still uncertain as...

https://connect.mayoclinic.org/comment/775063/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Comment

Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am...

https://connect.mayoclinic.org/comment/1082496/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024