Blood Cancers & Disorders Support Group

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Comment

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

Yes, just to reiterate what was said above, patients with ET should never donate blood or...

https://connect.mayoclinic.org/comment/1047370/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Comment

Hello Pink Flamingo, I understand medical insurance companies are difficult to navigaye among other issues. If...

https://connect.mayoclinic.org/comment/836434/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Comment

Is it possible to live with Polycythemia Vera (PV) without phlebotomies? Everyone's situation is different. All...

https://connect.mayoclinic.org/comment/1235645/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Comment

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Comment

Wow! Thanks so much for the information Lori! I had done some research on my own...

https://connect.mayoclinic.org/comment/1365958/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Comment

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Comment

Welcome, @jerrel, though I see you’ve been a member for several years but this is your...

https://connect.mayoclinic.org/comment/1239177/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2025

Comment

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

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