Blood Cancers & Disorders Support Group

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Comment

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Comment

Welcome, @jerrel, though I see you’ve been a member for several years but this is your...

https://connect.mayoclinic.org/comment/1239177/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2025

Comment

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Comment

Hi @mordonmordon. Recently, while visiting my hematologist/oncologist for followup appts, my blood work showed an increasing...

https://connect.mayoclinic.org/comment/781624/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

I am 73 years old, diagnosed with Polycythemia Vera last August. Hdroxyurea treatment started with 500mg...

https://connect.mayoclinic.org/comment/1415002/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

Comment

@chorusgirl500 There are different forms of polycythemia. Primary Polycythemia Vera generally involves an acquired mutation in...

https://connect.mayoclinic.org/comment/1467028/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025

Comment

@rabab101, I found this information and negative or non-detectable JAK2 "Negative results for all JAK2 mutations...

https://connect.mayoclinic.org/comment/834318/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Comment

My mother had polycythemia Vera in the 1990's. She had it for about 10 years and...

https://connect.mayoclinic.org/comment/1301191/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025