Blood Cancers & Disorders Support Group

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Comment

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Comment

I realize I’m replying to myself but I hope everyone can see this. I’m starting to...

https://connect.mayoclinic.org/comment/57943/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2020

Comment

My hematologist about 6 yrs ago diagnosed me with primary myelofibrosis at 71 yrs old, after...

https://connect.mayoclinic.org/comment/1217600/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 3:50pm

Comment

My platelet count was 1,225,000 when I was first diagnosed in Venezuela., S.A. My hematologist there...

https://connect.mayoclinic.org/comment/203950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Comment

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

Comment

Hello, I took serrapeptase for a while. I really had no idea if it was working...

https://connect.mayoclinic.org/comment/132666/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2020

Comment

Hi skossaz, I am so glad you are happy and doing well although your platelets are...

https://connect.mayoclinic.org/comment/1267671/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 26 10:19pm

Comment

Colleen, you had asked me to let you know how my husbands appt went with specialist...

https://connect.mayoclinic.org/comment/1252024/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 5:50pm

Comment

Hydroxyurea caused unusual tiredness and weakness. All I wanted to do was sleep or do nothing...

https://connect.mayoclinic.org/comment/1016782/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024