Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

547 total results

Comment

Hi @snakebite, If you do not mind my asking, did you have any symptoms when you...

https://connect.mayoclinic.org/comment/1345090/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2025

Comment

I am also inerested in what medication you are currently taking. I was on Anagrelide for...

https://connect.mayoclinic.org/comment/1203927/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2025

Comment

Hi @davi0937 , No, none of my doctors have told me how myelofibrosis affects bone health....

https://connect.mayoclinic.org/comment/1537215/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 10:44am

Comment

I was diagnosed with Myelofibrosis last summer. My platelets were high and I had funny looking...

https://connect.mayoclinic.org/comment/1503617/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 11:28pm

Comment

I am beginning to think my mom had this and no one told us. She lived...

https://connect.mayoclinic.org/comment/926244/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2023

Comment

@1pearl Hello friends! Thank you for your posts ! I am battling rare MPN CALLED MYELOFIBROSIS!!...

https://connect.mayoclinic.org/comment/1433127/

Discussion: Asked chatGPT about how long to be on treatment for Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Comment

I don't recall if you mentioned using NAC or glutathione. Individually they offer important benefits. Together,...

https://connect.mayoclinic.org/comment/132659/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Comment

@lyd0218 My personal experience The symptoms you mentioned I had and suffered from them ! I...

https://connect.mayoclinic.org/comment/1421550/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

Comment

Hi circawdm, I would agree with what you said if one has ET. My O/H told...

https://connect.mayoclinic.org/comment/1316170/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

Comment

I feel for you, I am in the same situation. My husband was diagnosed with MF...

https://connect.mayoclinic.org/comment/1520690/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 6 6:46am