Blood Cancers & Disorders Support Group

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Comment

@cathy8 It is interesting for me to hear that you have both CALR and Jak2. I...

https://connect.mayoclinic.org/comment/1485056/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 6:39pm

Comment

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Comment

Have not heard alot about Jakafi. I have had PV/JAK2 for 7 years, on Hydroxyurea for...

https://connect.mayoclinic.org/comment/1447775/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025

Comment

I have the Jak2 mutation and a very high platelet count. I am experiencing headaches, light...

https://connect.mayoclinic.org/comment/1412805/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Oct 10, 2025

Comment

I'm running into the same problem - an active site. I have the JAK2 mutation and...

https://connect.mayoclinic.org/comment/765332/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

ET is not necessarily a cancer. My heme doc says there are 4 types and the...

https://connect.mayoclinic.org/comment/917569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

Comment

@toste My doctor also said up to 600 was acceptable. Everyone has a different norm depending...

https://connect.mayoclinic.org/comment/1405672/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

Comment

Good day, mate has just been diagnosed with PV, having Jak2 mutation. Have had phlebotomy -...

https://connect.mayoclinic.org/comment/676062/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2022

Comment

Hi! Welcome to the group! I also have ET with positive JAK2. When I was first...

https://connect.mayoclinic.org/comment/1490356/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 1:30pm

Comment

@chorusgirl500 My 18 year old son just went through several rounds of CBCs until one came...

https://connect.mayoclinic.org/comment/1467334/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025