Blood Cancers & Disorders Support Group

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Comment

Good Morning, So, back in March I had a bone marrow biopsy and aspiration done and...

https://connect.mayoclinic.org/comment/231807/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2020

Comment

Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....

https://connect.mayoclinic.org/comment/1008961/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Comment

Hi @1pearl I am also in the US in VA, currently receiving treatment from a specialist...

https://connect.mayoclinic.org/comment/1216366/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Comment

Thanks for comment. Joe has polycythemia vera (PV Platelets go high sometimes the red blood cells...

https://connect.mayoclinic.org/comment/1067692/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

Comment

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Comment

Wow! Thanks so much for the information Lori! I had done some research on my own...

https://connect.mayoclinic.org/comment/1365958/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Comment

Yes, just to reiterate what was said above, patients with ET should never donate blood or...

https://connect.mayoclinic.org/comment/1047370/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Comment

Is it possible to live with Polycythemia Vera (PV) without phlebotomies? Everyone's situation is different. All...

https://connect.mayoclinic.org/comment/1235645/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Comment

Hello Pink Flamingo, I understand medical insurance companies are difficult to navigaye among other issues. If...

https://connect.mayoclinic.org/comment/836434/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023