Blood Cancers & Disorders Support Group

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Comment

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Comment

I was diagnosed with polycythemia vera 10 years ago, at the beginning I was getting a...

https://connect.mayoclinic.org/comment/1010255/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

@kat260 I’m 79 got my final diagnosis last week. It is Polycythemia Vera(MPN NOS-with Neutrophilic Leukocytosis)...

https://connect.mayoclinic.org/comment/1524111/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 3:19pm

Comment

Welcome to Mayo Connect, @lisbob40 Having blood a condition like polycythemia vera (PV) can be confusing....

https://connect.mayoclinic.org/comment/1416057/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Comment

I started on seven days a week and felt like crap. Hair loss, and super sensitive...

https://connect.mayoclinic.org/comment/1204224/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Comment

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Comment

Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....

https://connect.mayoclinic.org/comment/329372/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

Comment

In 2018 I was diagnosed with Polycythemia Vera (PV) which is a sister to your essential...

https://connect.mayoclinic.org/comment/1219391/

Discussion: Any advice for taking Hydroxyurea when you're sick?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Comment

Hi @nisi Welcome to Mayo Connect. I’m so sorry to see that there’s been a change...

https://connect.mayoclinic.org/comment/1523951/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 11:45am

Comment

Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....

https://connect.mayoclinic.org/comment/1008961/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024