Blood Cancers & Disorders Support Group

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Comment

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Comment

Bonnie, You will be amazed at how it will all come together with planning. Having such...

https://connect.mayoclinic.org/comment/1324245/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 10, 2025

Comment

Thank you , your post was a Godsend. After a down day yesterday with my husband’s...

https://connect.mayoclinic.org/comment/1252374/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

Comment

Greetings, I don't like the idea of looking towards an 'end stage'. That sounds like disaster....

https://connect.mayoclinic.org/comment/1049371/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Comment

Have you had a bone marrow biopsy to be sure that what you’re dealing with is...

https://connect.mayoclinic.org/comment/1215424/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Comment

Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...

https://connect.mayoclinic.org/comment/870437/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

Diagnosed with prefibrotic myelofibrosis 7/25. 78 years old with JAK2, ASXL1, ZRSR2 & TET2 mutations. Platelets...

https://connect.mayoclinic.org/comment/1366821/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Comment

Hi @bmarkable. I believe the medication Dr. Tefferi was talking about in the video is Imetelstat....

https://connect.mayoclinic.org/comment/1257278/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Comment

Yes . I had this for 10 1/2 years and used same medication until it no...

https://connect.mayoclinic.org/comment/50532/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

Comment

Hi Nellieblue, My husband has been on Tamsulosin for his Myelofibrosis two capsules a day for...

https://connect.mayoclinic.org/comment/101841/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 28, 2016