Blood Cancers & Disorders Support Group

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Comment

I just went from blood work monthly to every three months. I think either God is...

https://connect.mayoclinic.org/comment/986088/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

I worked for 40 + years in Cytogenetics. In our field chromosomes are listed as “normal”...

https://connect.mayoclinic.org/comment/1074264/

Discussion: Chromosomes positive

Support Group: Blood Cancers & Disorders

Posted: May 25 8:31am

Comment

I took Vonjo for my enlarged spleen which was seconday to my myelodysplasia with myeloftbrosis. Really...

https://connect.mayoclinic.org/comment/1082842/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 8 7:05am

Comment

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 4 8:07am

Comment

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30 2:47pm

Comment

And complaining? Lol. Seriously, it Could be an enlarged spleen which sits above your stomach making...

https://connect.mayoclinic.org/comment/132651/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

Comment

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Comment

When was his last blood test? Red platlet count ? White cell count? Where is pain...

https://connect.mayoclinic.org/comment/50521/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

Comment

Hello @jaylevel1, welcome to Connect. It is my understanding, and I am not a medical professional,...

https://connect.mayoclinic.org/comment/226228/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2018

Comment

I had ET for over 17 years. I was diagnosed at age 45. After the first...

https://connect.mayoclinic.org/comment/957613/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023