Blood Cancers & Disorders Support Group

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Comment

I've had essential thrombocythemia symptoms for 15 years now. I'm 70. To the best of my...

https://connect.mayoclinic.org/comment/929592/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

Hi @marthajones. Having Essential Thrombocythemia and being on on Hydroxyurea, your immune system won’t be as...

https://connect.mayoclinic.org/comment/782048/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

@loribmt thank you so much for your kind words! Made me tear up....because you are so...

https://connect.mayoclinic.org/comment/757007/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Comment

Hi everyone. I am a 68 year old woman, physically active with controlled asthma. I just...

https://connect.mayoclinic.org/comment/887042/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

"At 82 yes I would like to keep other parts of me as healthy as possible....

https://connect.mayoclinic.org/comment/783143/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Comment

@exon9 I don't claim to be a huge expert on this, but here goes. CALR is...

https://connect.mayoclinic.org/comment/1481931/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 14 8:18am

Comment

Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...

https://connect.mayoclinic.org/comment/1297950/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

Comment

Found this on Medlineplus: In general, LDH levels that are higher than normal usually mean you...

https://connect.mayoclinic.org/comment/1235011/

Discussion: High LDH with ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2025

Comment

The HU should help to bring down the high platelet level to a more normal level....

https://connect.mayoclinic.org/comment/1209073/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2025