Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
307 total results
All
Discussions (30)
Comments (277)
Comment
Actually it’s not going too bad. The chemo is shots. I have completely 2 rounds/ am...
https://connect.mayoclinic.org/comment/1082496/
Copy link to clipboard
Discussion:
Positive test results for amyloids
Support Group:
Blood Cancers & Disorders
Posted: Jun 7, 2024
Comment
S. I suggest you chat with your doctor. I found these two references that you may...
https://connect.mayoclinic.org/comment/889926/
Copy link to clipboard
Discussion:
Does anyone else have MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Jul 4, 2023
Comment
I was diagnosed in April 2016. I had been losing weight and anemic but my GP...
https://connect.mayoclinic.org/comment/195555/
Copy link to clipboard
Discussion:
Darzalex Treatment
Support Group:
Blood Cancers & Disorders
Posted: Jan 20, 2019
Comment
CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...
https://connect.mayoclinic.org/comment/1163333/
Copy link to clipboard
Discussion:
Can MGUS be cured by CRISPR?
Support Group:
Blood Cancers & Disorders
Posted: Oct 27, 2024
Comment
@evoxmas I just found out about this forum yesterday, so I am sure a lot has...
https://connect.mayoclinic.org/comment/1041695/
Copy link to clipboard
Discussion:
Diagnosed with AL Amyloidosis. What can I expect?
Support Group:
Blood Cancers & Disorders
Posted: Mar 28, 2024
Comment
I was diagnosed with system amyloidosis AL in March @ the Mayo Clinic in Rochester Minnesota....
https://connect.mayoclinic.org/comment/1069538/
Copy link to clipboard
Discussion:
Recently diagnosed with AL Amyloidosis: Any advice?
Support Group:
Blood Cancers & Disorders
Posted: May 17, 2024
Comment
It is definitely more likely that one will die with MGUS as a benign and asymptomatic...
https://connect.mayoclinic.org/comment/1112835/
Copy link to clipboard
Discussion:
Does anyone else have MGUS?
Support Group:
Blood Cancers & Disorders
Posted: Jul 27, 2024
Comment
Thank you I know nothing about this disease I have been battling HCM since 2013 since...
https://connect.mayoclinic.org/comment/886104/
Copy link to clipboard
Discussion:
Kappa light chain is elevated: Anyone dealing with this?
Support Group:
Blood Cancers & Disorders
Posted: Jun 27, 2023
Comment
What is the process for wanting to be evaluated at the Mayo Clinic? How do you...
https://connect.mayoclinic.org/comment/645619/
Copy link to clipboard
Discussion:
Waldenstroms and amyloidosis
Support Group:
Blood Cancers & Disorders
Posted: Oct 16, 2021
Comment
Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...
https://connect.mayoclinic.org/comment/1163047/
Copy link to clipboard
Discussion:
Can MGUS be cured by CRISPR?
Support Group:
Blood Cancers & Disorders
Posted: Oct 26, 2024
First
Previous
...
19
20
21
22
23
24
25
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect