Blood Cancers & Disorders Support Group

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Comment

Interesting you mention this. Yes yes and yes. With it radiating to my knee conceded me...

https://connect.mayoclinic.org/comment/1341397/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 8:03am

Comment

I took my first injection of Besremi last week. My doctor's office is working on setting...

https://connect.mayoclinic.org/comment/1234766/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:21pm

Comment

I see my additional messages may not have reached you. Go to pvreporter . com. There...

https://connect.mayoclinic.org/comment/1259837/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 7:03pm

Comment

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:42pm

Comment

Hello PV friend ! I have been on JAKAFI FOR 10 months took 20 milligrams a...

https://connect.mayoclinic.org/comment/1310325/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 22 11:53am

Comment

@susanvij I'm so sorry to hear of your brother's diagnosis. I understand that this is a...

https://connect.mayoclinic.org/comment/50509/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Comment

When I was diagnosed with Myelofibrosis back in 03/2024 my Hematologist placed me on Danazol. I...

https://connect.mayoclinic.org/comment/1132106/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Comment

Hi katgob, I'm certainly not one to diagnose your situation. But, I will tell you that...

https://connect.mayoclinic.org/comment/986132/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 24, 2023

Comment

I think steveduke is saying that the people on this forum are not doctors and you...

https://connect.mayoclinic.org/comment/1384972/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 2 11:09am

Comment

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023