Blood Cancers & Disorders Support Group

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Welcome, @gama1287. Getting a new diagnosis comes with a steep learning curve. You've come to the...

https://connect.mayoclinic.org/comment/1464606/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Comment

For everyone’s info, I messaged through the patient portal and was told up to 10 days...

https://connect.mayoclinic.org/comment/231795/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

Comment

I don't think anyone is telling people not to travel, just to take their meds and,...

https://connect.mayoclinic.org/comment/1089550/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

Comment

From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...

https://connect.mayoclinic.org/comment/870089/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

After two weeks on one pill of HU my eGFR went from 82 to 52. Has...

https://connect.mayoclinic.org/comment/826035/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Hello , I have been treated for PV/ JAK2 for four years . I was on...

https://connect.mayoclinic.org/comment/773685/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Comment

Thank you for this information. I will pass this along to my son. I recently found...

https://connect.mayoclinic.org/comment/252005/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Comment

I'm a 78 year old woman withET , JAK2, diagnosis 3 months ago. On Hydrea 500...

https://connect.mayoclinic.org/comment/1520821/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 6 9:15am

Comment

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...

https://connect.mayoclinic.org/comment/1048208/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024