Blood Cancers & Disorders Support Group

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Comment

in reply to @secglc2 Thank you for this. I had the second infusion last Friday and...

https://connect.mayoclinic.org/comment/906457/

Discussion: Iron Infusions/Side Effects

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Comment

Hello Lynn, I was diagnosed during a spine surgery with platelets in the mid 700s in...

https://connect.mayoclinic.org/comment/838658/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2023

Comment

My weird itching spells were the “only” symptom I had. My doctor said high iron can...

https://connect.mayoclinic.org/comment/871695/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jun 3, 2023

Comment

Hi.....my name is Claire and I also have ET. I have been taking Hydrea for almost...

https://connect.mayoclinic.org/comment/824418/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

Comment

Hi Eileen, So i have been in Pegasys for 3 months now. I inject once a...

https://connect.mayoclinic.org/comment/807365/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Comment

Hi Lori, started couple days ago but didn't pay attention until I weighed myself and no...

https://connect.mayoclinic.org/comment/916493/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Comment

Hi Lori - Judy here keeping you posted. Cutting my Tasigna from 600 mg to 300...

https://connect.mayoclinic.org/comment/765651/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2022

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

I am so fortunate with my Mycosis fungoides which I call CTCL, as I was diagnosed...

https://connect.mayoclinic.org/comment/943799/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

Hi @markgventnor, welcome to the forum. It’s interesting that you posted about a rash as I...

https://connect.mayoclinic.org/comment/994338/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024