Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

505 total results

Comment

Thank you Lori. I will do my blood work next week to see if the white...

https://connect.mayoclinic.org/comment/1330041/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Comment

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Comment

Hello @pendlebear. The good news is that the HU is working to lower your platelet levels…but...

https://connect.mayoclinic.org/comment/1306720/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Comment

I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count...

https://connect.mayoclinic.org/comment/882023/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Comment

I’m so happy for you. I’m 4 years in, 74 hrs old and seem to keep...

https://connect.mayoclinic.org/comment/895607/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

Is that your daily dosage? I was wondering how often you need phlebotomies? I’m taking 500mg...

https://connect.mayoclinic.org/comment/833870/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

Been on 500mg hydroxyurea since 2018. I am 79. Years old Only side effect I ever...

https://connect.mayoclinic.org/comment/1369613/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

Comment

Gina: Severe pain under your left rib cage sounds like potential spleen involvement and itching could...

https://connect.mayoclinic.org/comment/1085077/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

Comment

Diagnosed with ITP 5 months ago, age 80, was physically active prior to finding platelet count...

https://connect.mayoclinic.org/comment/908223/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

Comment

@jerrlin Diagnosed with PV 10 years ago. I am now 75 yrs old. Its been a...

https://connect.mayoclinic.org/comment/1521164/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Mar 6 3:51pm