Blood Cancers & Disorders Support Group

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Comment

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Comment

Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...

https://connect.mayoclinic.org/comment/826011/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

I've had essential thrombocythemia symptoms for 15 years now. I'm 70. To the best of my...

https://connect.mayoclinic.org/comment/929592/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

It is a big decision to start on hydroxyurea and all of us have a different...

https://connect.mayoclinic.org/comment/780799/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

Comment

Hi @marthajones. Having Essential Thrombocythemia and being on on Hydroxyurea, your immune system won’t be as...

https://connect.mayoclinic.org/comment/782048/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

Hi, @colran, Essential Thrombocythemia is a condition where your body is producing too many platelets. It’s...

https://connect.mayoclinic.org/comment/1523842/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:57am

Comment

@loribmt thank you so much for your kind words! Made me tear up....because you are so...

https://connect.mayoclinic.org/comment/757007/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Comment

Hi everyone. I am a 68 year old woman, physically active with controlled asthma. I just...

https://connect.mayoclinic.org/comment/887042/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

"At 82 yes I would like to keep other parts of me as healthy as possible....

https://connect.mayoclinic.org/comment/783143/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021