Blood Cancers & Disorders Support Group

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Comment

@carolgk Hi Carol, You have a bit of an adventure ahead with the upcoming allo-stem cell...

https://connect.mayoclinic.org/comment/1511032/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:58am

Comment

I, too, wanted a second opinion. I have Primary Myelofibrosis. My local clinic boasts as being...

https://connect.mayoclinic.org/comment/1420021/

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

Maybe your doctor should look on CDC, NIH and World Health Org..... In hematology, essential thrombocythemia...

https://connect.mayoclinic.org/comment/1280701/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Comment

Hello everybody,so this picture is my bone marrow biopsy results,I went to the doc and he...

https://connect.mayoclinic.org/comment/1039033/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

Comment

This is pretty normal - I had pain in that area for about a month -...

https://connect.mayoclinic.org/comment/889844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...

https://connect.mayoclinic.org/comment/817148/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Comment

@pesterthief, I found this information: "Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present...

https://connect.mayoclinic.org/comment/1168109/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

Comment

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Comment

Welcome to Mayo Connect, @jgjacksonmn1 Well, this news sure clipped you both off at the knees....

https://connect.mayoclinic.org/comment/1520151/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:19am

Comment

@allessio77 I’ve had PN for several years with pain increasing. Diagnosed with myelofibrosis, I began Hydrea...

https://connect.mayoclinic.org/comment/1459116/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025