Blood Cancers & Disorders Support Group

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Comment

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:08am

Comment

Hi Nancy @1nan, I have not seen these cells referenced in my lab reports but I...

https://connect.mayoclinic.org/comment/313989/

Discussion: Tear Drop Cells and Ovalocytes: Anyone had these in lab reports?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2020

Comment

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 18 hours ago

Comment

I have had polycythemia vera for over a year. I have been on Besremi for 3...

https://connect.mayoclinic.org/comment/1296587/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 2:16pm

Comment

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

Comment

Hi @1pearl, I know in retrospect you’re feeling that you shouldn’t have gotten the bone marrow...

https://connect.mayoclinic.org/comment/1348033/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 17 hours ago

Comment

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Comment

Hi, I think it is a good idea to have a Bone Marrow Biopsy before treatment...

https://connect.mayoclinic.org/comment/1270976/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 12:53pm

Comment

It is a smart choice to see a specialist that has focus on Myelofibrosis. I live...

https://connect.mayoclinic.org/comment/1314992/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 1:47pm

Comment

et1055, I found this comment from Colleen, one of our monitors, on another thread. I myself...

https://connect.mayoclinic.org/comment/1168338/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024