Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
289 total results
All
Discussions (35)
Comments (254)
Comment
The HU should help to bring down the high platelet level to a more normal level....
https://connect.mayoclinic.org/comment/1209073/
Copy link to clipboard
Discussion:
Starting 17th year with ET. What's ahead?
Support Group:
Blood Cancers & Disorders
Posted: Jan 11 11:43am
Comment
Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...
https://connect.mayoclinic.org/comment/882031/
Copy link to clipboard
Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Jun 20, 2023
Comment
I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...
https://connect.mayoclinic.org/comment/910025/
Copy link to clipboard
Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9, 2023
Comment
Hi @eansgardengirl, Welcome to Mayo Connect. You’ve come to the right place to connect with others...
https://connect.mayoclinic.org/comment/778367/
Copy link to clipboard
Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Nov 28, 2022
Comment
There are a series of genetic tests that can be performed to help determine mutations, as...
https://connect.mayoclinic.org/comment/252004/
Copy link to clipboard
Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Mar 1, 2019
Comment
Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...
https://connect.mayoclinic.org/comment/194256/
Copy link to clipboard
Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Mar 29, 2018
Comment
My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...
https://connect.mayoclinic.org/comment/1091333/
Copy link to clipboard
Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Jun 21, 2024
Comment
I found an article for you that may help explain about the JAK2 gene and how...
https://connect.mayoclinic.org/comment/1142007/
Copy link to clipboard
Discussion:
Jak2 positive, biopsy next: Does it mean I have blood cancer?
Support Group:
Blood Cancers & Disorders
Posted: Sep 15, 2024
Comment
Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...
https://connect.mayoclinic.org/comment/1076631/
Copy link to clipboard
Discussion:
Is my treatment a bit aggressive?
Support Group:
Blood Cancers & Disorders
Posted: May 28, 2024
Comment
I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred...
https://connect.mayoclinic.org/comment/803429/
Copy link to clipboard
Discussion:
Essential Thrombocythemia (ET) and viruses
Support Group:
Blood Cancers & Disorders
Posted: Jan 29, 2023
First
Previous
...
17
18
19
20
21
22
23
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect