Blood Cancers & Disorders Support Group

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Comment

Good News from an email received 9.11.2026 from the MPN Research Foundation: Dear MPN Community, We...

https://connect.mayoclinic.org/comment/1668509/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

Comment

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

@scnana Welcome to Mayo Clinic Connect! Getting a double diagnosis is certainly not for the faint-hearted,...

https://connect.mayoclinic.org/comment/1009127/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Comment

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Comment

Welcome Mayo Connect, @ally6lucas1 You popped into the right support group for members who have ET...

https://connect.mayoclinic.org/comment/1589193/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 2:10pm

Comment

@nohrt4me I've been on HU for 12 years, so far. Results have been up and down,...

https://connect.mayoclinic.org/comment/1623903/

Discussion: Essential Thrombocytosis: Do platelets ever decrease without meds?

Support Group: Blood Cancers & Disorders

Posted: Jul 18 7:33pm

Comment

Hi @cweible19782006 I just read through your reply and my first thought was, “Wow…with friends like...

https://connect.mayoclinic.org/comment/821825/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

Triple Negative Essential Thrombocythemia hi all, I have seen my platelet counts going up over past...

https://connect.mayoclinic.org/comment/942512/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

Comment

Issues with our eyes are scary for sure. To offer a quick (not necessarily final) answer...

https://connect.mayoclinic.org/comment/1556601/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: Apr 22 7:51am

Comment

@tamijulien I just got back from Mayo Clinic in Phoenix where I saw wonderful hematologist oncologist...

https://connect.mayoclinic.org/comment/1550447/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 12:50pm

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