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296 total results
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Discussions (35)
Comments (261)
Comment
Found this on Medlineplus: In general, LDH levels that are higher than normal usually mean you...
https://connect.mayoclinic.org/comment/1235011/
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Discussion:
High LDH with ET?
Support Group:
Blood Cancers & Disorders
Posted: Feb 12 7:57am
Comment
@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...
https://connect.mayoclinic.org/comment/231785/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Feb 7, 2019
Comment
The HU should help to bring down the high platelet level to a more normal level....
https://connect.mayoclinic.org/comment/1209073/
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Discussion:
Starting 17th year with ET. What's ahead?
Support Group:
Blood Cancers & Disorders
Posted: Jan 11 11:43am
Comment
Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...
https://connect.mayoclinic.org/comment/882031/
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Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Jun 20, 2023
Comment
I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...
https://connect.mayoclinic.org/comment/910025/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9, 2023
Comment
Hi @eansgardengirl, Welcome to Mayo Connect. You’ve come to the right place to connect with others...
https://connect.mayoclinic.org/comment/778367/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Nov 28, 2022
Comment
There are a series of genetic tests that can be performed to help determine mutations, as...
https://connect.mayoclinic.org/comment/252004/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Mar 1, 2019
Comment
Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...
https://connect.mayoclinic.org/comment/194256/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Mar 29, 2018
Comment
Hi @bshattuck138 It sounds like Becky has found the sweet spot of balance with the HU...
https://connect.mayoclinic.org/comment/1348045/
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Discussion:
What to look for if ET is progressing to something else.
Support Group:
Blood Cancers & Disorders
Posted: Jul 14 11:58am
Comment
My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...
https://connect.mayoclinic.org/comment/1091333/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Jun 21, 2024
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