Blood Cancers & Disorders Support Group

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Comment

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Thank you, Colleen for your input. Yes, I talked to my Dr last week, and she...

https://connect.mayoclinic.org/comment/1118745/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

Comment

Problem with amyloidosis is it is hard to diagnosis because so many other diseases have same...

https://connect.mayoclinic.org/comment/1470411/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Comment

@arti4 Arti4, my spleen has been enlarged for decades. That has caused me to take on...

https://connect.mayoclinic.org/comment/738409/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

Ms like2dance2 I can relate with your frustrations in getting someone to take your case. Our...

https://connect.mayoclinic.org/comment/1172561/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Comment

Thank you very much I will re read the information The last diagnosis from the oncologist...

https://connect.mayoclinic.org/comment/748997/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2022

Comment

After receiving a chemo treatment last February, he had an infusion reaction that required a 3...

https://connect.mayoclinic.org/comment/645353/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Comment

Good morning. Hoping this message finds you well. I found your message and wanted to share...

https://connect.mayoclinic.org/comment/874720/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2023

Comment

Well Lori, I made contact with my Oncologist like you suggested. It was something she said...

https://connect.mayoclinic.org/comment/738564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

Hey Emily, my name is Jennifer. I am currently being tested for Amyloidosis which can cause...

https://connect.mayoclinic.org/comment/858521/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023