Blood Cancers & Disorders Support Group

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Comment

Hello @soonerfan, How did your appointment on the 29th of March turn out? Were you able...

https://connect.mayoclinic.org/comment/1048610/

Discussion: Does any one have HOCM & Systemic Amyloidosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10, 2024

Comment

This is interesting, and potentially very helpful. The real point is that if you feel the...

https://connect.mayoclinic.org/comment/900332/

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Comment

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

Comment

To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...

https://connect.mayoclinic.org/comment/1250436/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:06pm

Comment

Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...

https://connect.mayoclinic.org/comment/969673/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Comment

Hi there ChefT, thank you kindly for your reply :) I have been concerned about amyloidosis,...

https://connect.mayoclinic.org/comment/883702/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Comment

I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...

https://connect.mayoclinic.org/comment/1279867/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:23am

Comment

Colleen, thanks for the link. I did a lot of reading and realized one sad fact....

https://connect.mayoclinic.org/comment/738604/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

Comment

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024