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Discussion
Experts on Smoldering Myoloma: Should I get a second opinion?
I live in Boise and I am wondering how I know if the hmotologist/oncologist I am seeing really knows about SMM and/or should I get...
Last active: Jan 3 10:14am
Discussion
I have smoldering Myeloma. Does anyone have this diagnosis?
Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? Does anyone have an abnormal protein in their blood , which is a precursor...
Last active: Jan 14, 2025
Discussion
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: Nov 6, 2025
Discussion
Anyone had Zometa alone or Zometa plus Xgeva?
My heme/onc has prescribed Xgeva plus Zometa treatments for my Smoldering Myeloma next month. Anyone who's been treated with this combination or just with Zometa?...
Last active: Oct 31, 2025
Discussion
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
Last active: Jul 2, 2024
Discussion
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: 1 day ago
Discussion
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Last active: Nov 28, 2025
Discussion
The SMM and MM Mayo zooms are great. Are there Leukemia zooms?
I have IgA Kappa Light Chain SMM, and a friend has leukemia. She isn't on meds so likely early, but could use more info and...
Last active: Mar 13 10:40am
Discussion
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
Last active: May 6, 2024