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Public Support Group 118 total results
Discussion
Have your platelets gone up?
I have essential thrombocytosis with CALR exon 9 mutation, no JAK2. I've been taking 500 mg hydroxyurea every other day for 2 1/2 years. About...
Discussion
My platelet count has increased after a year on Hydroxyurea (HU)
I have been taking HU (1000mg per day) for one year for essential Thrombocytosis . I have experienced little side effects and my platelet count...
Discussion
JAK2 Mutation - Effects and Questions
Have JAK2 mutation verified twice; one year apart and from different labs. As I understand, it may cause polycythemia vera, essential thrombocytosis, or leukemia. My...
Discussion
Philadelphia chromosome: Anxiety awaiting diagnosis
I’m so confused..googling way to much and having so much anxiety.. I was referred to oncologist with a high platelet count. I’m 61 and never...
Comment
I was confused by this also. My hematologist told me I have Essential Thrombocytosis but my...
https://connect.mayoclinic.org/comment/805735/
Comment
I have Essential thrombocytosis with JAK2 mutation. I take a drug called hydrea and it has...
Comment
I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential...
Discussion
Essential Thrombocythemia: Looking for information and support
I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...
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