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Leukemia CMML-2
I was just diagnosed with CMML-2 with my Blast count at 15%...Looking for any advise or experience out there...I am about to start chemo with...
Last active: Nov 15, 2018
Discussion
MDS with sideroblasts and trying Lospatercept or Elritercept?
Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?
Last active: Aug 1, 2025
Discussion
My husband has started taking Vonjo, has anyone taken Vonjo?
My husband has myelofibrosis. Was taking Vidaza it worked for a while. His Doctor started him on Vonjo, does anyone have experience with Vonjo.
Last active: Oct 11, 2025
Discussion
MDS 80 yr old male
My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...
Last active: Nov 19, 2025
Discussion
Has anyone had hearing loss after Azacitidine injections?
My husband was recently diagnosed with MDS-IB2, a total shock to us. We found out on a Friday and he started Vidaza on Monday. He...
Last active: Nov 7, 2025
Discussion
Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!
My 75 year old husband was diagnosed with AML on 7/19/23, after one month of worsening shortness of breath. He was scheduled for a cardiac...
Last active: Jun 23, 2025
Discussion
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...
Last active: Sep 1, 2024
Discussion
AML successful treatment
Happy New Year! I want to share a happy treatment update for my wonderful response to Venetoclax and Dacogen (similar to Vidaza) for treatment of...
Last active: Jun 28 12:42pm