354 total results
Discussion
Is Essential Thrombocythemia a blood disease or cancer?
I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?
Discussion
Anyone living with Essential Thrombocythemia with JAK2?
Has anyone been living with,ET, jac2 mutation
Discussion
Side effects w/ Zepbound and Hydroxyurea? Dx Essential thrombocythemia
I have round the clock burping, mild nausea, insomnia. Started HU Nov 2025. I have been on Zepbound since summer 2025. But now experience sour,...
Discussion
Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?
I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends
Discussion
Essential Thrombocythemia: Looking for information and support
I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Discussion
Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?
I felt confused and freaked out after the diagnosis. It seemed no one knew much about ET. I didn't know that hydroxyurea was chemo in...
Discussion
Does Essential Thrombocythemia cause hip pain?
Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Comment
@bobala, Many people have asked a similar question when diagnosied with one of the several types...
https://connect.mayoclinic.org/comment/1318106/
Comment
Hi @cindy, Welcome to Connect. It sounds like you have experience with ET. We have several...
Connect