Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
354 total results
Discussion
Is Essential Thrombocythemia a blood disease or cancer?
I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?
Last active: May 6 8:01am
Discussion
Side effects w/ Zepbound and Hydroxyurea? Dx Essential thrombocythemia
I have round the clock burping, mild nausea, insomnia. Started HU Nov 2025. I have been on Zepbound since summer 2025. But now experience sour,...
Last active: May 25 8:12am
Discussion
Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?
I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends
Last active: May 7 4:01pm
Discussion
Essential Thrombocythemia: Looking for information and support
I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...
Last active: Apr 21 9:27am
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Last active: Jun 4, 2025
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Last active: Mar 25, 2023
Discussion
Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?
I felt confused and freaked out after the diagnosis. It seemed no one knew much about ET. I didn't know that hydroxyurea was chemo in...
Last active: Apr 28 4:48am
Discussion
Does Essential Thrombocythemia cause hip pain?
Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.
Last active: Feb 8, 2024
Discussion
Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia
Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...
Last active: Aug 13, 2025