Blood Cancers & Disorders Support Group

I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...

I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?

I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here...

Does Essential Thrombocythemia cause hip pain? My hips have been hurting for days.

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

I felt confused and freaked out after the diagnosis. It seemed no one knew much about ET. I didn't know that hydroxyurea was chemo in...

I have round the clock burping, mild nausea, insomnia. Started HU Nov 2025. I have been on Zepbound since summer 2025. But now experience sour,...

Has anyone been living with,ET, jac2 mutation