Blood Cancers & Disorders Support Group

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Comment

Lori, Thank you for your encouraging words. Some days are more difficult than others, but I...

https://connect.mayoclinic.org/comment/724431/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2022

Comment

@annie14 thank you. What you’ve described is incredibly valuable and could help many others facing a...

https://connect.mayoclinic.org/comment/1462438/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Comment

Hi - I had a tele-visit (45 minutes) with Dr. David Dongli at Mayo Clinic. His...

https://connect.mayoclinic.org/comment/754077/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

Comment

I was at a routine visit in January 2024 and my cardiologist said I needed a...

https://connect.mayoclinic.org/comment/1556433/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Comment

Prayers For Clarification & Peace….After my diagnosis of amyloidosis & talking with my local doctors &...

https://connect.mayoclinic.org/comment/705230/

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

Comment

Hi. I was diagnosed with Al Amyloidosis that is affecting my kidneys. They started me on...

https://connect.mayoclinic.org/comment/1350233/

Discussion: Anyone treated for MGRS? What is your experience with side effects?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

Comment

I agree I was diagnosed several years ago also with MGUS and have been under the...

https://connect.mayoclinic.org/comment/1100067/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

Comment

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

My bone marrow biopsy was yesterday. Lidocaine did a fairly good job of dulling the drilling...

https://connect.mayoclinic.org/comment/1150116/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024