Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

242 total results

Comment

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Comment

I don't actually know what my markers are. I saw a pathology report 3 years ago,...

https://connect.mayoclinic.org/comment/943909/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

Welcome, @terdor! MDS treatments aren’t “one size fits all” because there are variables with each person....

https://connect.mayoclinic.org/comment/1286328/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Comment

Does anyone have this blood disorder? Vidaza is the only treatment I know of. I take...

https://connect.mayoclinic.org/comment/226235/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

Comment

We have several members in the forum who are receiving Vidaza treatments for their MDS or...

https://connect.mayoclinic.org/comment/1418774/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Comment

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and...

https://connect.mayoclinic.org/comment/1240977/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Comment

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Comment

Hi Lori, I am new here and thankful for all you do. My husband who was...

https://connect.mayoclinic.org/comment/1286105/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Comment

Hi Lori: it’s been awhile since I wrote to you. I just finished cycle one of...

https://connect.mayoclinic.org/comment/1419680/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

Comment

This message is in response to the Revlimid (Lenalidomide) rash discussion. After two years on Procrit/Retacrit...

https://connect.mayoclinic.org/comment/1244719/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025