Blood Cancers & Disorders Support Group

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Comment

I can definitely relate to your current predicament… I wanted to learn as much as possible...

https://connect.mayoclinic.org/comment/1385908/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2025

Comment

@loribmt hi , I hope you are doing well ! Firstly, I am sorry for late...

https://connect.mayoclinic.org/comment/1418619/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Comment

I also was diagnosed with AML About 6 months ago. I had MDS for 9’yesrs ago...

https://connect.mayoclinic.org/comment/1494565/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 30 10:03pm

Comment

Your mom sounds like a force, LOL! I chuckled out loud when you said ‘you’ve seen...

https://connect.mayoclinic.org/comment/1185754/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Comment

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

I was diagnosed with MDS in Feb, 2024 with an IPSS-R (International prognostic scoring system) risk...

https://connect.mayoclinic.org/comment/1083625/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Comment

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Comment

Colleen, you had asked me to let you know how my husbands appt went with specialist...

https://connect.mayoclinic.org/comment/1252024/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Comment

My husband was diagnosed with MDS in October, 2023. It is high risk; close to AML....

https://connect.mayoclinic.org/comment/1264743/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Comment

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

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