Blood Cancers & Disorders Support Group

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Comment

Hi @mickie6. I’ve not heard of the Jakafi Box test. I’m aware that when patients are...

https://connect.mayoclinic.org/comment/1552701/

Discussion: Has anyone had the Jakifi box test? My Blood % is 0!

Support Group: Blood Cancers & Disorders

Posted: Apr 17 9:59am

Comment

Hi davi0937, Thank you for posting. Great to had 17 years before getting myelofibrosis. Does that...

https://connect.mayoclinic.org/comment/1348903/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Comment

It’s been a blessing to connect daily with others who share similar concerns. I was diagnosed...

https://connect.mayoclinic.org/comment/1452770/

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

Comment

Welcome to Connect, @ronegeorge. Thank you for sharing your encouraging experience with using Hydroxyurea to control...

https://connect.mayoclinic.org/comment/1081066/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

Comment

@loribmt Could you share more information about your experience with the bone marrow transplant? I was...

https://connect.mayoclinic.org/comment/1489472/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:42pm

Comment

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Comment

I couldn't get my Anagralide through hospital was going to cost the earth to get through...

https://connect.mayoclinic.org/comment/1202803/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

Comment

@1pearl would you mind sharing your doctors name at City of Hope? I’ve been considering going...

https://connect.mayoclinic.org/comment/1420257/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...

https://connect.mayoclinic.org/comment/1252690/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

Comment

@colran When I was originally diagnosed with ET in 2005 at the age of 50, I...

https://connect.mayoclinic.org/comment/1527344/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:58am