Blood Cancers & Disorders Support Group

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Comment

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

My buddy was diagnosed with Myelofibrosis at Mayo a few weeks ago. He will start on...

https://connect.mayoclinic.org/comment/697402/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

Comment

Welcome to Connect, @snakebite It’s so important for us to keep a positive countenance especially when...

https://connect.mayoclinic.org/comment/893512/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29 5:32pm

Comment

Hi @marygantt, I totally relate to feeling confused by doctor’s recommendations! I was diagnosed with ET...

https://connect.mayoclinic.org/comment/1325811/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 12 3:34pm

Comment

I, too am looking for confirmation ref serrapeptase and myelofibrosis. I took a nice product for...

https://connect.mayoclinic.org/comment/132626/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2020

Comment

Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...

https://connect.mayoclinic.org/comment/1312721/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25 3:50pm

Comment

There is so much info on the internet that it will be exhausting to sort through...

https://connect.mayoclinic.org/comment/1369812/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13 11:37am

Comment

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840952/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...

https://connect.mayoclinic.org/comment/1103248/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024