Blood Cancers & Disorders Support Group

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Comment

My husband was put in Jakafi several weeks ago to treat GVHD after allogenic stem cell...

https://connect.mayoclinic.org/comment/1315436/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

Comment

I moved to Jakafi 2 years ago after becoming intolerant to hydroxyurea after about 5 years...

https://connect.mayoclinic.org/comment/1244461/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

Comment

:Yes I am being treated for myelofibrosis with Jakafi. I was never able to take the...

https://connect.mayoclinic.org/comment/1099091/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

I have PV and was put on 10mg then 30 mg Jakafi. Side-effects were constipation, scrubby...

https://connect.mayoclinic.org/comment/849654/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2023

Comment

I have been on Jakafi since Aug., 2022. I started at 10 mg/day but then my...

https://connect.mayoclinic.org/comment/849643/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2023

Comment

@loribmt I have been diagnosed with MF in October 2025. Having read the dreadful list of...

https://connect.mayoclinic.org/comment/1494327/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 2:33pm

Comment

I'm just starting on Jakafi and am anxious about the side effects and the necessity of...

https://connect.mayoclinic.org/comment/1381817/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

Comment

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

Thanks for your reply. I have difficulty swallowing periodically, and not constantly. The doctor does not...

https://connect.mayoclinic.org/comment/640521/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 29, 2021

Comment

@mumblipeg So sorry you are dealing with so much I’ve been on hydroxy since 2018 and...

https://connect.mayoclinic.org/comment/1457518/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2025