Blood Cancers & Disorders Support Group

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Comment

I'm running into the same problem - an active site. I have the JAK2 mutation and...

https://connect.mayoclinic.org/comment/765332/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Comment

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

Comment

Hi John, My name is Debbie. I was just diagnosed with CEL IN December 2023. I...

https://connect.mayoclinic.org/comment/997143/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

Christinele, There are also a lot of ET JAK2 discussions on healthunlocked.com. It originates in the...

https://connect.mayoclinic.org/comment/845595/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

ET is not necessarily a cancer. My heme doc says there are 4 types and the...

https://connect.mayoclinic.org/comment/917569/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

Comment

I checked with my hemo/oncologist and taking B12 as advised by my PCP is ok with...

https://connect.mayoclinic.org/comment/1091499/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

I am amazed at the amount of HU some people are taking. I take 500 mg...

https://connect.mayoclinic.org/comment/877802/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Comment

I was newly diagnosed with ET with the JAK2 mutation. I do have the red feet....

https://connect.mayoclinic.org/comment/785397/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

Comment

I have Jak2 diagnosed in 2019. Was stationed at New River for three years. VA doctor...

https://connect.mayoclinic.org/comment/732843/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022