Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,560 total results

Comment

I have no pain or anything else with Hydrea, 500 mg daily. My platelets were 800,000...

https://connect.mayoclinic.org/comment/854230/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

Comment

@dragonflylynda I do not take HU for my ET JAK2...I only take a baby aspirin. No...

https://connect.mayoclinic.org/comment/1466046/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

Comment

My platelet level is the same as yours with JAK2. I take a baby aspirin. So...

https://connect.mayoclinic.org/comment/1441800/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Comment

So sorry for your problems. I wish you all the best. Sorry I didn't see, do...

https://connect.mayoclinic.org/comment/1421263/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 22, 2025

Comment

also, to be clear.. I haven't been properly "diagnosed" yet I don't think... just my hematologist's...

https://connect.mayoclinic.org/comment/840529/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

Am I understanding right that your hemoglobin and hemocrit are high, you have PV symptoms, you're...

https://connect.mayoclinic.org/comment/888838/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

Comment

@kat260 JAK2 burden diagnostic test can be repeated to track the effectiveness of your treatment. I...

https://connect.mayoclinic.org/comment/1523677/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 6:57am

Comment

@dwilson072516 Hi. If your husband does not have the JAK2 V617F mutation, which is commonly associated...

https://connect.mayoclinic.org/comment/1564471/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 11:46pm

Comment

@birgitr Excuse my ignorance, but what is peg? I have ET with Jak2 mutation but hemo...

https://connect.mayoclinic.org/comment/1565275/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 3 7:14am

1
…
17
18
19
20
21
…
145