Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,474 total results

Comment

@1995victoria, those are all good questions to ask at your next appointment with oncology. I would...

https://connect.mayoclinic.org/comment/1417629/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 17, 2025

Comment

with pv NO when they take your blood it cannot be donated. I asked the oncologist...

https://connect.mayoclinic.org/comment/737001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

Comment

Am I understanding right that your hemoglobin and hemocrit are high, you have PV symptoms, you're...

https://connect.mayoclinic.org/comment/888838/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

Comment

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

On your blood chemistry report are your platelets elevated, have they been rising over a few...

https://connect.mayoclinic.org/comment/1507287/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 16 11:39am

Comment

@chorusgirl500 My Jak2 was positive and my doctor and I decided together that the bone biopsy...

https://connect.mayoclinic.org/comment/1466393/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

Comment

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check...

https://connect.mayoclinic.org/comment/1132796/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

Comment

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

Comment

I, too, have a JAK2 mutation with a low hemoglobin, slight increase in WBCs and elevated...

https://connect.mayoclinic.org/comment/878925/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

Comment

Interesting that Dr did a DNA analysis. I had a bunch of blood tests and a...

https://connect.mayoclinic.org/comment/812995/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023