Blood Cancers & Disorders Support Group

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Comment

lexsjk, I am so sorry for what you have been through. ET is so rare that...

https://connect.mayoclinic.org/comment/1528764/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 17 7:13am

Comment

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Comment

OMG! Yes, that is exactly what the oncologist said. "CLL won't kill you something else will."...

https://connect.mayoclinic.org/comment/996585/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Comment

Hi @lithuanian, I would like to invite a few members who have talked about a myelodysplastic...

https://connect.mayoclinic.org/comment/240720/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2019

Comment

Hello @niki101 I did encounter a bout of itching after treatment, (Non Hodgkin's) I was taking...

https://connect.mayoclinic.org/comment/312757/

Discussion: Hodgkin's lymphoma and itching and other side effects

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2020

Comment

Hi Arti4, I was experiencing allot of bad itching before my Et/Jak2 diagnosis and my dermatologist...

https://connect.mayoclinic.org/comment/874288/

Discussion: MGUS and restless leg syndrome

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Comment

Always check with your own oncologist, because we are all different. Speaking for myself: Generic Claritin...

https://connect.mayoclinic.org/comment/1389367/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2025

Comment

Good morning all.....to anyone having a rash and scalp itchiness I have Essential Thrombocytosis which causes...

https://connect.mayoclinic.org/comment/744043/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Comment

Good Morning, When I had breast cancer the doctor told me to use Aquaphor and it...

https://connect.mayoclinic.org/comment/1298858/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

Comment

The tipping point for me to try Jackifi would be if/when my hematologist decides my platelet...

https://connect.mayoclinic.org/comment/764327/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022