Blood Cancers & Disorders Support Group

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Comment

Questions about acceptable platelet counts come up often: Might be helpful to remember that clot risk...

https://connect.mayoclinic.org/comment/1172723/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2024

Comment

I have been diagnosed with myelo- fibrosis about seven years ago. Before that it was a...

https://connect.mayoclinic.org/comment/50504/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2013

Comment

Update: So I had my follow up with my cardiologist and according to him there's nothing...

https://connect.mayoclinic.org/comment/885330/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2023

Comment

Thanks for moving me Colleen, much appreciated. I live in a small coal mining community in...

https://connect.mayoclinic.org/comment/731543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

Comment

I was started on 500 mg per day, then up to three extra per week after...

https://connect.mayoclinic.org/comment/1177399/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Comment

I'm 70, ET-CALR x15 yrs, HU x 6 yrs. Recently have been experiencing worsening skin itching...

https://connect.mayoclinic.org/comment/1085383/

Discussion: Ongoing effects of ET and drugs

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Comment

Hi @sandy1959, actually itching is one of the most commonly reported symptoms of essential thrombocytosis. Hives...

https://connect.mayoclinic.org/comment/817463/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Comment

I also have the disorder of High Factor VIII. I had a bilateral pulmonary embolism occur...

https://connect.mayoclinic.org/comment/593601/

Discussion: High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2021

Comment

On Sat, Dec 14, 2024 at 7:34 AM Mayo Clinic Connect < nf+9223a906+28451071@n1.hubapplication.com> wrote: > ##...

https://connect.mayoclinic.org/comment/1190261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Comment

Good question! I am sorry you're experiencing these problems. Looking back, are you having more dizziness/brain...

https://connect.mayoclinic.org/comment/1180614/

Discussion: Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024