Blood Cancers & Disorders Support Group

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Comment

New subject. I have Polycythemia Vera not sure how long however I noticed my cells were...

https://connect.mayoclinic.org/comment/1126243/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 18 3:12pm

Comment

I have had Polycythemia Vera (PV) for 6 years now. No other symptoms before diagnose other...

https://connect.mayoclinic.org/comment/1031426/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 4:29am

Comment

Wow that is an extremely high amount to start on but I can only assume it...

https://connect.mayoclinic.org/comment/1065766/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11 5:31am

Comment

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Comment

mlm0601, I have had little or no effects from taking Hydroxyurea (Hydrea) for 6 years now....

https://connect.mayoclinic.org/comment/1052803/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18 4:29am

Comment

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Comment

Hi @seamus1010 I found an article on Healthtap.com with the same question you have…Is it safe...

https://connect.mayoclinic.org/comment/825949/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...

https://connect.mayoclinic.org/comment/807931/

Discussion: Possible Polycythemia Tinnitus, Dizziness, Headache, Fatigue

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

rmegg @rmegg while my first phlebotomy help; numbers were 300 down from 700, short time. I...

https://connect.mayoclinic.org/comment/816259/

Discussion: polycythemia vera: Rusfertide in stage 3 research: Any info?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023