Blood Cancers & Disorders Support Group

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Comment

Hah. Whatever works, eh? 😂 You made me laugh out loud this morning. I intended to...

https://connect.mayoclinic.org/comment/726708/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

Comment

I had positive results from a kidney biopsy sent to Mayo Clinic with an Amyloidosis diagnosis...

https://connect.mayoclinic.org/comment/965936/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Comment

@nick0820 Please keep us in the loop of communication! It's great you are not letting this...

https://connect.mayoclinic.org/comment/88332/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

Comment

Yes, thanks. She has AL amyloidosis. She got her stem cells back Friday. When she is...

https://connect.mayoclinic.org/comment/273513/

Discussion: Protecting patient from getting infections from me & others

Support Group: Caregivers

Posted: Aug 26, 2019

Comment

@buckett “Have any other males out there on this forum with MGUS seen this if cytogenetic...

https://connect.mayoclinic.org/comment/1221769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2025

Comment

yes, what you learned is correct. The AvWS was diagnosed first, and when the usual suspects...

https://connect.mayoclinic.org/comment/1185087/

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

So sorry to hear this about both being coupled as in your case! Amyloidosis sometimes seems...

https://connect.mayoclinic.org/comment/869639/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...

https://connect.mayoclinic.org/comment/1041681/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Comment

@barbarian1 That is the purpose of a baseline biopsy, to show the initial health of your...

https://connect.mayoclinic.org/comment/1433000/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Comment

I was recently diagnosed and I am about to finish or rather complete a series of...

https://connect.mayoclinic.org/comment/962761/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023