Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

282 total results

Comment

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

Comment

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

Comment

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

Comment

Now that he has had the PD surgery and waiting for it to heal before they...

https://connect.mayoclinic.org/comment/213106/

Discussion: AL amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2018

Comment

Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...

https://connect.mayoclinic.org/comment/883525/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Comment

Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...

https://connect.mayoclinic.org/comment/782599/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...

https://connect.mayoclinic.org/comment/1120375/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8 10:57pm

Comment

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Comment

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Comment

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019