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Comment

I took camzyos for HCM, and lost taste. I was later diagnosed with AL Amyloidosis systemic....

https://connect.mayoclinic.org/comment/1468463/

Discussion: Does anyone have change in taste while on hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2025

Comment

You could have a bone marrow biopsy. I would ask for your Dr to do a...

https://connect.mayoclinic.org/comment/1119116/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

Comment

So sorry to hear this about both being coupled as in your case! Amyloidosis sometimes seems...

https://connect.mayoclinic.org/comment/869639/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

I had positive results from a kidney biopsy sent to Mayo Clinic with an Amyloidosis diagnosis...

https://connect.mayoclinic.org/comment/965936/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Comment

@buckett “Have any other males out there on this forum with MGUS seen this if cytogenetic...

https://connect.mayoclinic.org/comment/1221769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2025

Comment

yes, what you learned is correct. The AvWS was diagnosed first, and when the usual suspects...

https://connect.mayoclinic.org/comment/1185087/

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

@nick0820 Please keep us in the loop of communication! It's great you are not letting this...

https://connect.mayoclinic.org/comment/88332/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

Comment

Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...

https://connect.mayoclinic.org/comment/1041681/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Comment

@cousinvinney My Kappa FLC bloodwork level of 5 was ten years ago. IF you have MGUS,...

https://connect.mayoclinic.org/comment/1490467/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: Jan 25 3:28pm

Comment

Just got back a Positive Amyloid fat pad biopsy Everyone I talked to prior to the...

https://connect.mayoclinic.org/comment/1082452/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024