Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with ET around 2002 and it transitioned to myelofibrosis 10 years ago. I've...

https://connect.mayoclinic.org/comment/1416511/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Comment

@gajokos Sure. I’m working from memory, but I would say I had zero symptoms for about...

https://connect.mayoclinic.org/comment/1503326/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 2:59pm

Comment

Yes. I have Myelofibrosis “and” Erdheim Chester Disease, and the first sign - although no doctor...

https://connect.mayoclinic.org/comment/1511367/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 2:55pm

Comment

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Comment

My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on...

https://connect.mayoclinic.org/comment/1249038/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2025

Comment

Hi, I,too, took Hydroxyurea for years to combat high platelet count. About three years I was...

https://connect.mayoclinic.org/comment/50507/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Comment

Have you also been given Allopurinol to prevent gout and cramps - stops the build up...

https://connect.mayoclinic.org/comment/943396/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

@toste I was also diagnosed with myelofibrosis and the JAK2 mutation about a year ago. I...

https://connect.mayoclinic.org/comment/1494172/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 11:32am

Comment

I am on Original Medicare and have an excellent Medigap policy. At least for Myelofibrosis, a...

https://connect.mayoclinic.org/comment/1328486/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025