Blood Cancers & Disorders Support Group

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Comment

Yes . I had this for 10 1/2 years and used same medication until it no...

https://connect.mayoclinic.org/comment/50532/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

Comment

Hi Nellieblue, My husband has been on Tamsulosin for his Myelofibrosis two capsules a day for...

https://connect.mayoclinic.org/comment/101841/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 28, 2016

Comment

Hi @bmarkable. I believe the medication Dr. Tefferi was talking about in the video is Imetelstat....

https://connect.mayoclinic.org/comment/1257278/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 4:43pm

Comment

I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...

https://connect.mayoclinic.org/comment/910025/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Comment

Hello @ettap and welcome to Connect. It is good to see that you have confirmed your...

https://connect.mayoclinic.org/comment/194256/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

Comment

Hi circawdm, I would agree with what you said if one has ET. My O/H told...

https://connect.mayoclinic.org/comment/1316170/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30 12:50am

Comment

I don't recall if you mentioned using NAC or glutathione. Individually they offer important benefits. Together,...

https://connect.mayoclinic.org/comment/132659/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Comment

@scottmatteo I, too, have myelofibrosis. diagnosed by Mayo almost 6 years ago. But at that time,...

https://connect.mayoclinic.org/comment/657916/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Comment

I am beginning to think my mom had this and no one told us. She lived...

https://connect.mayoclinic.org/comment/926244/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2023

Comment

Hi, I agree that the whole person approach is better. I finally have a decent primary...

https://connect.mayoclinic.org/comment/1275734/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6 2:05pm