Blood Cancers & Disorders Support Group

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Comment

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

My buddy was diagnosed with Myelofibrosis at Mayo a few weeks ago. He will start on...

https://connect.mayoclinic.org/comment/697402/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

Comment

Welcome to Connect, @tamijulien. At this time, a stem cell transplant remains the only possibility for...

https://connect.mayoclinic.org/comment/1103793/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Comment

Thank you, Lori, for your response and suggestions. It’s so gratifying and comforting to now be...

https://connect.mayoclinic.org/comment/1253226/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 11:38am

Comment

Hello PV friend ! I have been on JAKAFI FOR 10 months took 20 milligrams a...

https://connect.mayoclinic.org/comment/1310325/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 22 11:53am

Comment

Welcome to Connect, @snakebite It’s so important for us to keep a positive countenance especially when...

https://connect.mayoclinic.org/comment/893512/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

I, too am looking for confirmation ref serrapeptase and myelofibrosis. I took a nice product for...

https://connect.mayoclinic.org/comment/132626/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2020

Comment

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840952/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

Hi @doreen78 and welcome to Connect. I think I’m as confused as you are about your...

https://connect.mayoclinic.org/comment/1291816/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 9:26am

Comment

Fantastic. If you scroll to the bottom of this information from Mayo Clinic, you'll find a...

https://connect.mayoclinic.org/comment/1103248/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024