Blood Cancers & Disorders Support Group

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Comment

I'm 5 years post SCT. I'm currently dealing with skin GVHD: scleroderma, rash, dark pigmentation. I...

https://connect.mayoclinic.org/comment/633002/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 5, 2021

Comment

I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...

https://connect.mayoclinic.org/comment/783004/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

Comment

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Comment

Thank you for the comments--I will check out the article. The clinical study I'm on is...

https://connect.mayoclinic.org/comment/1215478/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Comment

Hello, so far I am on five mg. of prednisone and 400 mg of Hydroxychloroquine ....

https://connect.mayoclinic.org/comment/855572/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

Comment

Thank you for responding, John! I just want to make sure @deb913 sees this reply so...

https://connect.mayoclinic.org/comment/998978/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Comment

Thanks for the info Colleen. His wife signed him up for the U of MI center...

https://connect.mayoclinic.org/comment/698511/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2022

Comment

I was diagnosed with ET around 2002 and it transitioned to myelofibrosis 10 years ago. I've...

https://connect.mayoclinic.org/comment/1416511/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Comment

The doctor suggested trying a different drug. I have tried Jakafi and didn't like it, but...

https://connect.mayoclinic.org/comment/1402745/

Discussion: Anyone experiencing chest pain due to anemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Comment

I can relate to the low adrenal function. I am 48, diagnosed with PV last year,...

https://connect.mayoclinic.org/comment/1126529/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024