Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

339 total results

Comment

Yes. My husband is being taken care of a Cardiologist and Hematologist even though we live...

https://connect.mayoclinic.org/comment/902503/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2023

Comment

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Comment

This scan can be used to find out if you have a rare disease called cardiac...

https://connect.mayoclinic.org/comment/754823/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

Comment

I have Light Chain Amyloidosis and the nature of this rare form is it attacks your...

https://connect.mayoclinic.org/comment/1293926/

Discussion: Amyloidosis and low SpO2

Support Group: Blood Cancers & Disorders

Posted: May 1, 2025

Comment

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

Comment

@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...

https://connect.mayoclinic.org/comment/661954/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2021

Comment

@kanaazpereira Thank you for asking me to join in. I was diagnosed with a very rare...

https://connect.mayoclinic.org/comment/88316/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Comment

I was treated for amyloidosis in 2007 at Mayo Clinic Rochester. I was there with a...

https://connect.mayoclinic.org/comment/689030/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2022

Comment

I was diagnosed with MGUS December 2024- this started in December 2023. My lab results were...

https://connect.mayoclinic.org/comment/1238465/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2025

Comment

I think I found the Connection for you!! It’s an older conversation and I’m not sure...

https://connect.mayoclinic.org/comment/874415/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023